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It’s 10:30 pm I just got off the phone with a mother who was desperate. Her child was in so much pain she reached out to me for help. She began by asking a very nuanced medical question, one that was far beyond my scope to answer. As we spoke, it became clear that the real crisis was not only the symptoms. It was the silence around them. I did not give medical advice. I cannot and I will not. But I did share something from my own lived experience, nearly thirty nine years of

Today is a special day. While it isn’t technically my birthday, over the last few years I’ve come to cherish this date. Today marks three years since I walked onto a stage, butterflies in my stomach, heart racing, voice a little shaky as I shared with over a hundred strangers what it’s like to live with eczema. I had no idea that experience would forever change my life. I walked off that stage feeling on fire, alive, passionate, and hungry to do more with the life I had been

My frames broke, so I’m trying on new ones… but in this current eczema flare, my ears are so sensitive and swollen that even the slightest touch is unbearable. I keep wondering when I’ll actually get to enjoy my new specs. For many people, choosing glasses or contacts is about style or preference. For me, it depends entirely on how my skin is doing that day. It’s a necessity, not a choice. Moments like this show the invisible side of living with a chronic skin condition, wher

Living with a chronic skin condition means navigating pain in places most people never think about. Today I’m sitting in a dentist’s waiting room, already bracing myself for how every gentle touch might sting. This flare has left my eyes puffy, my skin inflamed, and even opening my mouth feels like a challenge. It’s a reminder that life doesn’t pause just because my skin is screaming. What you see on the surface is only a fraction of the experience. The choices I make — from